An answer to little-rebellion
Hi! I was wondering, as if/when your petition actually gets the government to take notice it will still take time for legislation to be changed, it may take some time for them to take notice and the fact you have an ongoing condition have you ever considered moving to a country where Xyrem is more readily available. If so why is this not an option for you and would you recommend it for others with similar conditions while they wait for legislation to be changed?
Thanks very much for taking the time to write in your question to the blog.
Legislation moves like frozen molasses unfortunately. We see this all the time with technology - it’s moving quicker than the government can keep up with. So, I’m prepared for a long wait for the decriminalisation of Xyrem.
I would definitely consider moving to a country that has more liberal laws around Xyrem (although I can’t think of any right now), but the issue sadly is money. I need to work to earn enough to pay for the things I need, and I don’t think that I’d have enough (depending on the country) to migrate, especially with the language barriers, etc.
It’s a good idea, but one that will limit me unfortunately.